Sociological Analysis of the patients with genetic disorder Thalassemia: A Study of Ward no 25 for Thalassemia patients in PGIMS Rohtak

This research paper addresses the relevance of Parsons‟ concept „sick role‟ to the experience of illness through a genetic disorder Thalassemia in contemporary society, which suggests that the increasing predominance of this chronic disorder changes the temporal structure of the society. This has important implications for structure of social expectations and obligations associated with the „sick role‟.Thalassemia is a genetic disorder and 10% of the world's total Thalassemic patients are found in India. The concern is that one out of every 30 children is born with Thalassemia trait/carrier of mutated gene.With specific application to a group of people those living relatively long term with a genetic disorder whichever transmitted through parents to their off-springs. Approximately 20% of the world population carries alpha and beta Thalassemia. India is also one of the countries of the world which is severely affected by thalassemia disorder as there are 40 million Thalassemia careers in India and 1 lakh thalassemia major patients who have to depend on blood transfusions on regular basis. 3000 children in the world die every year due to uncontrolled iron overload of the age at 10 to 20. The child with the affected gene can be prevented from being born with Chronic Vellus Sampling during 11-13 month of pregnancy.